tag:blogger.com,1999:blog-8671366218652725665.post9150842911634870057..comments2023-10-10T02:45:33.126-07:00Comments on Stevie and The Dream of Horses: The begining of the story...Gabriellhttp://www.blogger.com/profile/08234048668862770716noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-8671366218652725665.post-74303026981597516942008-04-13T20:25:00.000-07:002008-04-13T20:25:00.000-07:00I saw your blog some time ago.I've got these googl...I saw your blog some time ago.<BR/><BR/>I've got these google news alerts set for stuff relating to brain tumors and I think that's how I found your blog.<BR/><BR/>I never wanted to comment. I know it's public on the internet and anyone can read, but I felt a little bit like I did when I came to Stevie's memorial, like I was peeking in on your family in private taking a shower or something and I didn't want to intrude.<BR/><BR/>But today you wrote something that took my breath away because I'd forgotten, it's been over 10 years since I even thought of it.<BR/><BR/>Steven had a host of problems when he was born, the night he came my head spun with all the facts the doctors related to me.<BR/><BR/>During the next week, while he was still in PICU, there were all sorts of tests.<BR/><BR/>The thing I'd forgotten about was Pierre Robin syndrome, that's what they told me he might have. My sister printed out a boatload of information on it and somewhere in my files I have it.<BR/><BR/>And I was always worried about Steven, from day one.<BR/><BR/>A very close friend I became acquainted with when Kyra was ill, her son died in 2001 from bsg, he was 9.<BR/><BR/>I wrote her about 6 months before Steven was diagnosed and I told her I had this deep-seated fear that some tragedy would eventually befall him, and that I just didn't have the same feeling about Sean.<BR/><BR/>Her family had dinner with us two days before they found Steven's tumor.<BR/><BR/>I emailed her about the tumor they found, I couldn't bring myself to speak the words to her after our previous conversations.<BR/><BR/>Ever since he was diagnosed I blank my mind when I start to think about the future.<BR/><BR/>I don't want to predict anything. I don't want to know. I just want to love both of them now.Kathyhttps://www.blogger.com/profile/14682272042615851184noreply@blogger.com